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Ayansh, 16 months old, is suffering from a rare genetic disorder that needs immediate attention. ‘The fear of losing Ayansh to her rare genetic disorder erupts from her mother’s eyes in tears of sadness and despair, just as a dam breaks. This is a disorder for which there is only one cure – 160 million medicine ($2145937.60)
Farah Khan has said in her emotional appeal, ‘Even after being 16 months old, he cannot walk or stand. He can only drink fluids and lie on the bed. I request all of you to join me and help save little Ayansh.’,
Tired of the happenings of the day, Ayansh’s mother puts her baby to sleep and takes a long bath with her gaze, knowing that any day can be her last. Her rare and fatal disorder is so dangerous that if the parents do not bring money for its treatment, they will lose her forever.
Sonu Sood shares, ‘The price of the medicine he needs is so high that we can get it only when we all come together. Only we can help give a new life to Ayansh.
The disorder that Ayansh suffers from is called Spinal Muscular Atrophy (SMA), which causes loss of nerve cells and stunted growth of muscles. It usually affects 1 in every 10,000 children. For the family, it was soul-shaking news, as the only cure for this is a drug called Zolgensma that is only available in the U.S. can be imported from
Ayansh’s mother said, ‘Ayansh’s condition came to the fore when I came to know that he is not able to walk or do any kind of activity like children of his age. At first I thought it must have been just a learning issue, but as time went on, the development of his body deteriorated. From swallowing milk to breathing, it seemed impossible for my son to do every basic life support.’
Ayansh was born after 12 years of the couple’s marriage and it was very painful to see this happen to her. But it happened. Destiny cursed Ayansh with the most cruel disease that would take more than a lifetime for the parents to cure.
Ayansh’s mother continued, ‘Coming from a lower-middle class background, my husband works as an employee at TCS, and I work hard as a housewife. With whatever little money we have, we run our lives and fulfill our needs. {(160000000)} crores, arranging such an amount is beyond the capacity of any working class man, we are already a struggling family.’,
According to the doctor, ‘Ayansh’s condition is very critical. If he doesn’t get the medicine soon, I fear he won’t be able to survive.
Ayansh is yet to experience all that life has to offer him. He has yet to see the beauty and persevere on the difficult path. Give him a second chance in life through your contribution. The amount is huge, but it is not more precious than Ayansh’s life. The victim’s mother pleaded, ‘If each one of you contributes by making a donation, we can save Ayansh from his illness forever’.
If you would like to contribute to Ayansh’s treatment, click here.
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Disclaimer: This article has been produced on behalf of Keto by the Spotlight team of Times Internet.
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